Hey Everyone. Thanks so much for all of your prayers and comments and FB posts. I was up early this morning pumping so I thought I would check e mail and such since I didn't really get a chance to yesterday, and it's so overwhelming all of your support and love!
Well, after we posted last night, things kind of settled down. Elijah is kind of at a weird critical age, since he's a premie too. They don't tend to like to do the surgery until babies are past 35 weeks gestation. And he will be there on Wednesday. But at the same time they don't want his stats to keep droping or him to get any sicker. So they spent the night waiting and watching. We checked on him a few times, when I was up pumping, but other than that we got some good rest in our "walk-in closet" room, Ryan is actually still sleeping. But it was nice that we were both able to stay at the hospital and have a private room where we could go and sleep. Children's is not at all set up like Evergreen! At Evergreen the babies have their own rooms with a couch for parents to sleep on and a TV and it's very homey and everything is VERY private (sometimes too private considering we never met a single family when we were there with Caleb). Children's just have more open rooms in a circle around a nurses station, so there's not anyplace for parents to go and be comfortable. So when we got "checked in" last night it was nice to have some peace and quiet.
I spoke with Eli's nurse about 15 minutes ago, and they are still trying to get in a central line, which has taken longer than expected, so pray for that to go smoothly as it's very important. But she said that they will probably give up for the time being. Also Ryan talked to our nurse last night when we were up pumping and his stats have declined a bit, which isn't surprisng and is to be expected, but it wasn't enough to worry doctors into rushing him into surgery. So we are still waiting.
So another crazy thing with all of this is that this heart condition isn't really genetic and no one we have spoken too has ever seen mother/child with the same issue. They say there may be a genetic correlation but it's not common at all, he said it may increase a baby's risk for having a heart defect from like 1% for all babies to about 3ish%, so not a strong correlation. The doctors always start explaining it as if they are explaining it to someone who has never heard of the condition before (and rightfully so) but when we tell them that I had the same thing they look shocked and surprised and sort of freak out a bit! In the midst of it all, its actually kind of funny, I can see their research wheels spinning! But I also can't imagine going through this as a parent not already knowing what is going on and not having experience in this area (Mom and Dad you were amzing when you had to go through this with me!!!). And as much as we are trying to see positive aspects to this sittuation it is still very hard and the unknown is so so so scary right now! So please continue to pray for Elijah, as he will most likely have his surgery sometime today and there are so many risk factors that he is faced with!
Love to you all!
We are praying constantly for Eli, for you and Ry, for the Drs. May the Lord's peace, His peace that passes all understanding, be your comfort and your guide as you navigate thru this. Love you all dearly.
ReplyDeleteI second mom's comment...we sure love you all and are fiercely praying as are all of our friends! LOVE YOU so!
ReplyDeleteYup, Justin and I too! Praying, and have "Lit the beacons!" (LOTR reference meaning our communities are praying too!) :)
ReplyDeleteLove you guys so much.
I'm amazed at how often you're able to update. I've been asking for prayers from everyone I know, the more the better! Love you guys!
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