As I posted yesterday we got discharged from Children's because the doctors did not think that he had Kawasaki's disease, however; they wanted us to keep watching him. Yesterday he woke up from his nap "sick" again with another fever and not feeling well. We gave him Tylenol and he took another nap before dinner and then ate a big dinner had a bath and went back to bed and slept 12 hours. He woke up not feeling well, but perked up a little later in the morning and never did have a fever at all. We then had a follow up this morning with the pediatrician and he was doing well and seemed in good spirits. He even told me that he wanted to go back to the Hospital so he could watch TV in bed and eat bacon! What a funny boy! I told the doctor I wouldn't believe that he was well until he woke up from a nap without a fever. She did hear some rattling in his lungs so we got an X-ray which turned out negative for pneumonia. She wasn't sure what to think but said to call if he had a temperature when he woke up from his nap.
Sadly, he woke up with a 102.5 temperature again today. Which makes day 5 of waking up with a temp over 101, and day 9 with waking up with a temperature at all! I called his the doctor that we saw today and she has phone calls in to Cardiology and infectious disease at Children's and is waiting to hear back regarding their recommendations.
At this point I am getting a little concerned for him. it seems like a long time to be sick and have a fever. Please be praying that we get to the bottom of this or that it just resolves (if it truly is a virus that is still running it's course)very quickly! I just wanted to send out an update so people know to still be praying for him. I hope it's nothing at all! Thanks!
Friday, October 3, 2014
Thursday, October 2, 2014
Thanks for praying
Eli and I are home now. It turned out this morning that the medical team thought that Eli's symptoms did not add up to Kawasaki's disease at this time. Based on all of the lab work they did, they are assuming that he just has a virus and it just needs to run its course. Sadly for Eli, viruses hit Eli harder than they do most kids so whenever he gets anything he usually ends up at Childrens for one reason or another, never the ER though! We do have a follow up with the pediatrician tomorrow morning to make sure things are still going well.
He was a tired boy and fell asleep on the way home. I am hoping he will sleep all afternoon and feels better when he wakes up. Thank you for all of your prayer! I truly believe that it helped him turn the corner. I'll update again if there is anything else significant to pray for. For now, he just needs to rest and his body needs to heal! So keep praying for that.
He was a tired boy and fell asleep on the way home. I am hoping he will sleep all afternoon and feels better when he wakes up. Thank you for all of your prayer! I truly believe that it helped him turn the corner. I'll update again if there is anything else significant to pray for. For now, he just needs to rest and his body needs to heal! So keep praying for that.
What's up with E?
As many of you probably saw on Facebook last night we ended up in the ER at Seattle Children's yesterday with Eli. Thanks for your prayers! I wanted to give you all a better update so you won't be freaking out.
Well Eli started with a low grade fever at the end of last week that would come and go. He acted fine and when I asked him if he felt sick or if anything hurt, he'd reply "No, I feel fine" with a look of "you're crazy mom" on his face and continue playing. Well come Monday his fever got worse and he started acting like he didn't feel well and had some sniffles. I just figured he'd gotten a cold or the flu, and it would just run it's corse. Well after 3 days of higher fever and more miserable boy I thought that 6 days was a long time to have a fever, so I called the pediatrician last night and got him right in (I love that our pediatrician's office have weird hours and can generally squeeze kids in anytime!!).
The doctor that saw him didn't really know what to think and kind of, sort of, thought he MIGHT have a disease called Kawasaki's disease. This is a disease that affects the heart and the blood vessels. Given Eli's heart history (which those of you who are unfamiliar can learn more about in this blog if you're interested!) she didn't want to take any chances. So she referred us down to Children's ER where his cardiology team is located.
Well after several tests last night, they concluded that he didn't have strep... And that's about it! After they ruled out strep they took some blood and other samples and ran some labs. They are not sure that he has Kawasaki's disease as he only has 2 out of the 4 symptoms needed for diagnosis. But they did find out that his inflammation was quite high, so that was a bit concerning. The cardiology team still wants to do an Echo on him this morning to continue to rule out Kawasaki's disease. So we will do that later (when he wakes up, we didn't get to bed till midnight last night!!).
I will post more as I know more. For now we are just chillin on the floor (we moved out of ER last night) until Eli's temp is gone without meds. Prayers are appreciated that he kicks this thing fast and we can get out of this joint!! Last night the boys did have fun watching Frozen, so that was special for them since we don't tend to watch movies on school nights!
Well Eli started with a low grade fever at the end of last week that would come and go. He acted fine and when I asked him if he felt sick or if anything hurt, he'd reply "No, I feel fine" with a look of "you're crazy mom" on his face and continue playing. Well come Monday his fever got worse and he started acting like he didn't feel well and had some sniffles. I just figured he'd gotten a cold or the flu, and it would just run it's corse. Well after 3 days of higher fever and more miserable boy I thought that 6 days was a long time to have a fever, so I called the pediatrician last night and got him right in (I love that our pediatrician's office have weird hours and can generally squeeze kids in anytime!!).
The doctor that saw him didn't really know what to think and kind of, sort of, thought he MIGHT have a disease called Kawasaki's disease. This is a disease that affects the heart and the blood vessels. Given Eli's heart history (which those of you who are unfamiliar can learn more about in this blog if you're interested!) she didn't want to take any chances. So she referred us down to Children's ER where his cardiology team is located.
Well after several tests last night, they concluded that he didn't have strep... And that's about it! After they ruled out strep they took some blood and other samples and ran some labs. They are not sure that he has Kawasaki's disease as he only has 2 out of the 4 symptoms needed for diagnosis. But they did find out that his inflammation was quite high, so that was a bit concerning. The cardiology team still wants to do an Echo on him this morning to continue to rule out Kawasaki's disease. So we will do that later (when he wakes up, we didn't get to bed till midnight last night!!).
I will post more as I know more. For now we are just chillin on the floor (we moved out of ER last night) until Eli's temp is gone without meds. Prayers are appreciated that he kicks this thing fast and we can get out of this joint!! Last night the boys did have fun watching Frozen, so that was special for them since we don't tend to watch movies on school nights!
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