Eli is still doing well, as in he is still stable. It's been a long day again for us, but at least we weren't under crazy unbearable amounts of stress. A few times we were able to just sit down and relax for a few minutes. We tend to check on Eli every few hours, every time we go see him he is either the same or a little better. They did increase his fluids this morning, and by this afternoon they had seen a little more urine output which is what they want to see. If he doesn't pee out the waste it just leaks out of his vessels, so the more he pees the less drainage he has, so that is the goal. It will still be a few days before they close him back up, but he is taking baby steps towards that goal.
We would greatly appreciate more prayer that Eli will continue fighting and healing! He's made it through so much and he is amazing! But he still has a ways to go. Also, I would love prayer for my stomach. Luckily my headaches have gone away completely, but I think with so much activity and walking around, my belly is taking longer to heal than it did last time. It's quite difficult to be trying to recover from surgery yourself and still try to do everything normally.
Also, another new prayer request. The guy at the front desk told us earlier that the parent rooms were filling up quickly and they might need to give ours to someone else. That freaks us out because we don't want to leave, but wouldn't have anywhere else to go near the hospital, but home. So just prayer that we will get to keep our closet room for awhile!
Hey Adrienne, We encountered some similar problems when we were at Children's with Ella and we spoke to a patient advocate named Mark and he got us all set up. If you want, give Jenn a call and she can talk to you about what we went through and how to deal with Children's. I'll send you her cell in a private message on Facebook. We're praying for you guys and I'll post it to the internal Microsoft prayer list as well, if that's okay.
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