So it's me (Adrienne) this time around. Well Saturday (the 12th) was a good day. As Ryan mentioned previously, Eli went on the oxygen on Thursday and Friday still had some bumps in the road while they were adjusting the levels. But today was definitely a "doing the same day". That made me feel a ton better to see that he wasn't declining any, and things were more smooth sailing. He is up to about 10cc on his feeds and they have slowed down on the aggressiveness of the increases for now. That makes me a bit more comfortable considering Caleb's digestive history! But Eli definitely has a desire for food, and is a great binky sucker, which I think will come in handy when they start letting him eat again. For now they give all of his food via NG tube because it's safer with the nasal cannula in his nose, and they don't want him to choke when trying to eat.
When I first got to the hospital today, I was able to have a good stretch of cuddle time with Eli. I was able to snuggle and do Kangaroo-Care with him for about two and a half hours. It was so great to just be able to be with him and hold him, and I think it helped both of us! Even though I could barely move at the end of it, for sitting still for so long.
Also, we were able to have more of a family day today. No one watched Caleb for us and Ryan and Caleb went to the "beach" in Kirkland for a few hours after dropping me off at the Hospital and threw rocks and "bird watched" (Caleb brought some binoculars with him!! Funny kid). Then they came back to the hospital where we ate our lunch and Caleb watched a Veggie Tales and napped. He did a great job at the hospital, considering it's so boring and we were there for a long time. He wanted to say hi to all of the nurses and would stand just inside the door waiting for one to walk by, then he would pounce and tell them all about his toys! Hopefully they weren't too annoyed! But it was so nice to have all of us there, and I think it made me feel better to not feel like I was choosing between Eli and Caleb, and could spend time with both of them.
Another positive note, since my surgery I have had this terrible headache, that was like a really really really bad migraine, and I could barely open my eyes sometimes. My massive pain killers only took the edge off the pain. So Friday night I called the on-call doctor and she paged the anesthesiologist for me. He came and paid me a visit in Eli's room. He was a little concerned that it was a spinal leak, from the spinal they gave me, but it was in the wrong part of my head, so he wasn't quite sure what to think. he said to watch it for another day, and if it didn't go away they would want to take a look and possibly do a spinal block, where they take blood from your arm and use it to create a clot in your spinal cord, to stop the spinal fluid from leaking out. It's a bit of an invasive procedure. He also said to take a ton of caffeine and that would help it... what an awesome medicine!! COFFEE!!!! But last night I drank a lot of water and slept in my own bed, and this morning I woke up and was feeling a lot better. I was really glad since the headache was really debilitating, and not what I need right now! So keep praying that it doesn't come back, and I continue to have improvement in my condition! It's so hard for me to not be able to do anything and be so slow moving!!!
Thank you everyone for all of your prayers and for following our Eli story!
oh I'm so glad to hear you are on the mend & Eli is too. I will continue to pray sweet, sis. remember to call me if you need help with caleb or if you need a prayer or a hug...I'm here. love ya.
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