Well Little E had another good day yesterday and today. Yesterday they finally let him eat again, which he was very happy for. He ate like a champ at his 7:00 feed and downed an entire 8 mL! Which isn't a lot but for a tiny baby who hasn't eaten in over a week, it is a lot. We cut him off there so his belly can get used to having food in it again (and so he doesn't get NEC). But today we gave him 10 mL, and he is due to eat again in a few minutes. He is still fast asleep though. I think he likes having food. Plus eating wears him out. But that is such awesome progress, and I am glad the doctors are just letting him eat however much he wants to eat at this point, so he can control how much he eats so his belly doesn't get too full.
Also last night they tried to run a pic line in his hand, which is a stronger form of IV. But they couldn't get one in, so had to leave the central line. Which is lame, but OK for now. Then this morning they removed his arterial line so he has both of his hands free again! So he is down to some leads (which he will have until he leaves and are no big deal to us) his central line IV, but it's nothing like it was a few days ago, and his NG tube which they haven't even used to feed him in 2 days.
He is also on the waiting list for the floor! We requested being sent back to Evergreen because it's closer to home and a nicer hospital for families to stay at. But they wanted him to be watched by the cardiology team for longer so want him to stay here. Which is fine with us, since there's a medical reason to be here. The biggest concern I have is just that feeding is not an emphasis at this hospital like it is at Evergreen and at this point I would like to work on it more. I have heard that Children's routinely send kids home with NG tubes, and I am not really OK with that, I would much rather have him eating his foods orally by the time he gets home. So just pray that all goes well with the feeding aspect of our work now. He is still taking all of his feeds with a bottle because it's easier for a premie, especialy a premie who just had surgery, and they want to measure how much he is getting. Plus they want eating to be a positive experience for him. But tomorrow the OT said that he can probably start trying to breast feed again, which would be great! So pray that that is able to happen and all goes well!
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